Sunday, September 20, 2009

How Do You Say Good-Bye to Your Baby Brother


. . . I'm praying that I don't have to.

My brother, Skeet, has been diagnosed with MSA-C. One year ago he walked with a wide stance and had some minor slurring of speech. Today he is in a wheelchair and can barely take care of himself. His diagnosis is death, which is almost a certainty within 2 to 3 years. Skeet is only 47 years old . . . how do you say good-bye to your baby brother?

Our sister, Peggy, has been diligent in trying to find a treatment which will ease the devastating symptoms of this disease and keep him with us for a few more years. They have learned that there is a research center in Germany that will do the stem cell treatment, giving him a chance to regain some of his motor skills and, hopefully, allow him to drive again. The cost of the treatment alone is approximately $10,000, which does not include airfare, hotel, and food expenses. My family simply does not have this amount of money. We are trying desperately to raise the money to pay for the trip and travel expenses. If anyone out there can help, please contribute whatever you can - even $1.00 will help tremendously. Please, any contributions to:


And, in case you think that this is just a request for money, which it quite blatantly is, I am also going to try to document my brother's journey (with the help of my sister). I hope to be able to learn more about this disease and to share with you his progress. If anyone has any first-hand knowledge of MSA-C, please share what you know with us.
Skeet's Stem Cell Treatment for MSA-C